Our Support Group

These are things that have come up in previous meetings etc. that you might find useful:

Living with ataxia

http://www.ataxia.org.uk/ Ataxia UK aim to support everyone affected by ataxia; people with the condition, their families, carers and friends. They also fund research into developing treatments - Their ultimate goal is to find a cure for the ataxias.
http://www.naidex.co.uk/ The UK's best events for inspirational independent living, providing visitors with the latest products and services in the rehabilitation and homecare industry.

People who have ataxia

http://matthewlaw.co.uk/ I have designed this site as a means of support and information for those people with an interest in Friedreich's Ataxia and for disabled travellers considering foriegn travel.
http://ohbother.co.uk/ Katie writes about how ataxia affects her.


http://www.allcleartravel.co.uk/ A travel insurance designed for those with pre-excisting conditions.
http://www.wheelchair friendlyholiday.co.uk/ Matthew, a member of our group, has a villa there which has been modified by two people with ataxia who have a combined experience of over 40 years of living life from a wheelchair. It has been so well thought out for a wheelchair user/someone with ataxia that it takes away the stresses of staying in standard accessible places.
http://www.switchsticks.com/ These lightweight walkers can be folded and stowed easily in overhead lockers on aircraft etc.
http://joby.com/gorillapod/ This is a camera tripod which has bendy feet and it sits snugly on the arm rest of a wheelchair – the Gorilla Pod would be dead handy on holiday.


http://www.efds.co.uk/ At many gyms now they have instructors who are trained in inclusive fitness – pop your post code into this site and you might be surprised what’s available in your area.

This is a passive, assisted or fully active exercise bike with hand cycle (optional) for people with limited mobility which can be used from a chair or wheelchair.


http://www.ceacard.co.uk/ This card entitles anybody who receives DLA or Attendance Allowance to one free ticket for a person accompanying them to the cinema.
http://www.disabledpersons-railcard.co.uk/ A Disabled Persons Railcard entitles a disabled person and their companion to 1/3 off rail travel.